One U for Family Caregivers
For nearly 20 years, College of Nursing researchers, clinicians, and educators have been leading the way in supporting caregivers. The College is uniquely positioned to lead an interdisciplinary effort to revolutionize care and inform new methods of support for patients and their caregivers.
A growing, but largely unseen, group of family caregivers is quietly providing the healthcare many Americans receive. Their unpaid work is valued at $470 billion nationally ($4.2 billion in Utah) and often comes at the expense of caregivers health. The Family Caregiving Collaborative supports the advancement of person- and family-centered care, where patients and caregivers define their "family" and determine how they will participate in care and decision-making.
- Through Education: Empower our future healthcare workforce to recognize the critical role of family caregivers.
- Through Research and Practice: Test new approaches that support patient AND family caregiver health and well-being.
- Through Outreach: Partner with community stakeholders and policy makers to improve the lives of family caregivers and those they care for.
The Collaborative's mission is to help create a future where caregivers of all ages, races, ethnicities, and gender are seen, heard, understood, valued, connected, and supported.
Family Caregiving Forum
2023 Family Caregiving Forum - December 6, 2023
Morning Session for Clinicians in Training:
- Addressing The Mental Health Needs of Family Caregivers: Presentation Recording
- Essential Support Skills for Engaging and Assisting Caregivers: Presentation Recording
Afternoon Session
- Forum Welcome: Presentation Recording
- First Session: Issues for Family Caregivers & Mental Health: Presentation Recording
- Second Session: Ending Mental Health Stigma: Presentation Recording
- Third Session: Policies for Family Caregivers & Mental Health: Presentation Recording
- Final Session & Conclusion: Caregiver and Clinician Dialogue: Presentation Recording
2022 Family Caregiving Forum, November 28, 2022
Presenters: Lee Ellington, Michael Hogue, Kem C. Gardner Policy Center, members of FCC's Caregiving Advisory Board and Caregiving Policy Panelists
Date: November 8, 2022
Welcome: Presentation Recording
First Session: Utah Caregiving Report: Presentation Recording
Second Session: Using the Power of the Community : Presentation Recording
Final Session & Conclusion: Moving Forward Family Caregiving Policies in Utah: Presentation Recording
Conversations with Caregiving Researchers
This speaker series is brought to you by the Collaborative on Caregiving Science Across the Lifecourse (CSAL)
Biopsychobehavioral Approach to Caregivership
Presenter: Youngmee Kim, PhD, University of Miami
Date: Febuary 14, 2024 | 10AM-11AM MST
Developing a Comprehensive System of Support for Latino Alzheimer’s Disease Caregivers
Presenter: Iveris Martinez, PhD, California State University, Long Beach
Date: January 10, 2023 | 10AM-11AM MST
Caregiving as a Public Health Priority
Presenter: Courtney Van Houtven, PhD, Duke University
Date: November 1, 2023 | 10AM - 11AM MST
Past Speaker Events
If you are interested in any of the recordings for these events, please contact christine.moua@nurs.utah.edu
Laura Gitlin, PhD, FGSA, FAAN | Drexel University - April 05, 2023
- The Long Road to Implementation of Caregiver Support Programs: The Case of the COPE Program
Rebecca Utz and Debra Scammon, PhDs | University of Utah, Family Caregiving Collaborative - March 29, 2023
- An Interactive Panel Discussion: Using Community Advisory Boards and Community Engagement to Enhance Caregiving Research and Caregiving Advocacy
Fawn Cothran, PhD, RN, GCNS-BC, FGSA | National Alliance for Caregiving (NAC) - February 22, 2023
- Caregiving Research at the National Alliance for Caregiving: Priorities and Opportunities
Katherine Ornstein, PhD, MPH | Johns Hopkins University - December 07, 2022
- The Use of Administrative Data to Enhance Caregiver Research: Challenges, Considerations, and Future Directions
Jennifer Beebe-Dimmer, PhD, MPH | Wayne State University - November 16, 2022
- The Detroit Research on Cancer Survivors (ROCS) Cohort Study: Explaining poorer outcomes among African American cancer survivors and their caregivers
J. Nicholas Dionne-Odom, PhD, RN, ACHPN, FAAN | University of Alabama at Birmingham - October 05, 2022
- 3 Ways My Thinking Has Changed About Designing Decision Support For Family Caregivers
Carrie Henning-Smith, PhD, MPH, MSW | University of Minnesota - September 28, 2022
- Unpaid Caregiving in Rural Areas: Unique Challenges and Opportunities
Ellen Lipstein, MD, MPH | Cincinnati Children’s Hospital Medical Care - May 04, 2022
- Parent Roles in Pediatric Shared Decision Making
Erin Bouldin, PhD, MPH & Mary Jo Pugh, PhD, RN | University of Utah - April 27, 2022
- Supporting Post-9/11 Veterans with TBI, Epilepsy, and Dementia and their Caregivers
Margaret Longacre, PhD, MSHE | Arcadia University - March 30, 2022
- Integrating Caregivers into Care: Processes and Stakeholder Considerations
Family Caregiving Collaborative Reports
Caregiving Scholars
Keep updated and take advantage of activities and funding designed to support researchers/educators, have access to a larger network of caregiving scholars, learn more about community services, and provide input on the direction of the FCC.
Interested in staying connected with the FCC and being on the Caregiving Scholars Listserve? Complete this quick registration: https://uofunursing.formstack.com/forms/family_caregiving_initiative_inquiry_form_faculty
Funding Opportunities
FCC provides financial support (e.g., small grants, pilot grants, travel funds) to Caregiving Scholars at the University of Utah.
Lee Ellington, PhD
