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One U for Family Caregivers

For nearly 20 years, College of Nursing researchers, clinicians, and educators have been leading the way in supporting caregivers. The College is uniquely positioned to lead an interdisciplinary effort to revolutionize care and inform new methods of support for patients and their caregivers. 

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A growing, but largely unseen, group of family caregivers is quietly providing the healthcare many Americans receive. Their unpaid work is valued at $470 billion nationally ($4.2 billion in Utah) and often comes at the expense of caregivers health. The Family Caregiving Collaborative supports the advancement of person- and family-centered care, where patients and caregivers define their "family" and determine how they will participate in care and decision-making.

  • Through Education: Empower our future healthcare workforce to recognize the critical role of family caregivers.
  • Through Research and Practice: Test new approaches that support patient AND family caregiver health and well-being.
  • Through Outreach: Partner with community stakeholders and policy makers to improve the lives of family caregivers and those they care for.

The Collaborative's mission is to help create a future where caregivers of all ages, races, ethnicities, and gender are seen, heard, understood, valued, connected, and supported. 

Family Caregiving Forum

2023 Family Caregiving Forum - December 6, 2023

Morning Session for Clinicians in Training:

Afternoon Session

2022 Family Caregiving Forum, November 28, 2022

Presenters: Lee Ellington, Michael Hogue, Kem C. Gardner Policy Center, members of FCC's Caregiving Advisory Board and Caregiving Policy Panelists
Date: November 8, 2022

Welcome: Presentation Recording 
First Session: Utah Caregiving Report: Presentation Recording 
Second Session: Using the Power of the Community : Presentation Recording 
Final Session & Conclusion: Moving Forward Family Caregiving Policies in Utah: Presentation Recording 

Conversations with Caregiving Researchers

This speaker series is brought to you by the Collaborative on Caregiving Science Across the Lifecourse (CSAL)

Biopsychobehavioral Approach to Caregivership

Presenter: Youngmee Kim, PhD, University of Miami
Date: Febuary 14, 2024 | 10AM-11AM MST

Presentation Recording

Developing a Comprehensive System of Support for Latino Alzheimer’s Disease Caregivers

Presenter: Iveris Martinez, PhD, California State University, Long Beach

Date: January 10, 2023 | 10AM-11AM MST

Presentation Recording

Caregiving as a Public Health Priority 

Presenter: Courtney Van Houtven, PhD, Duke University
Date: November 1, 2023 | 10AM - 11AM MST

Presentation Recording

Past Speaker Events

If you are interested in any of the recordings for these events, please contact

Laura Gitlin, PhD, FGSA, FAAN | Drexel University - April 05, 2023
  • The Long Road to Implementation of Caregiver Support Programs: The Case of the COPE Program
Rebecca Utz and Debra Scammon, PhDs | University of Utah, Family Caregiving Collaborative - March 29, 2023
  • An Interactive Panel Discussion: Using Community Advisory Boards and Community Engagement to Enhance Caregiving Research and Caregiving Advocacy
Fawn Cothran, PhD, RN, GCNS-BC, FGSA | National Alliance for Caregiving (NAC) - February 22, 2023
  • Caregiving Research at the National Alliance for Caregiving: Priorities and Opportunities
Katherine Ornstein, PhD, MPH | Johns Hopkins University - December 07, 2022
  • The Use of Administrative Data to Enhance Caregiver Research: Challenges, Considerations, and Future Directions
Jennifer Beebe-Dimmer, PhD, MPH | Wayne State University - November 16, 2022
  • The Detroit Research on Cancer Survivors (ROCS) Cohort Study: Explaining poorer outcomes among African American cancer survivors and their caregivers
J. Nicholas Dionne-Odom, PhD, RN, ACHPN, FAAN | University of Alabama at Birmingham - October 05, 2022
  • 3 Ways My Thinking Has Changed About Designing Decision Support For Family Caregivers 
Carrie Henning-Smith, PhD, MPH, MSW | University of Minnesota - September 28, 2022
  • Unpaid Caregiving in Rural Areas: Unique Challenges and Opportunities
Ellen Lipstein, MD, MPH | Cincinnati Children’s Hospital Medical Care - May 04, 2022
  • Parent Roles in Pediatric Shared Decision Making
Erin Bouldin, PhD, MPH & Mary Jo Pugh, PhD, RN | University of Utah - April 27, 2022
  • Supporting Post-9/11 Veterans with TBI, Epilepsy, and Dementia and their Caregivers
Margaret Longacre, PhD, MSHE | Arcadia University - March 30, 2022
  • Integrating Caregivers into Care: Processes and Stakeholder Considerations

Caregiving Scholars

We have caregiving scholars across campus from the College of Nursing, College of Health, School of Medicine, College of Social & Behavioral Science, College of Social Work, School of Business, and more!


Interested in staying connected with the FCC and being on the Caregiving Scholars Listserve? Complete this quick registration:


FCC Financial Support for Caregiving Scholars 

Meet the Family Caregiving Collaborative Director

Lee Ellington, PhD

Contact Us

Christine Moua
Academic Program Manager, Family Caregiving Collaborative


Lee Ellington, Director, FCC

Christine Moua, Academic Program Manager, FCC

Deidre Schoenfeld, Associate Director - Strategy, CON

Sara Hart, Senior Faculty Associate, CON

Rebecca Utz, Senior Faculty Associate, CSBS

Erin Bouldin, Senior Faculty Associate, SOM