Our Mission
Create a future where family caregivers of all ages, races, ethnicities, and genders are seen, heard, understood, valued, connected, and supported.
Through Education
- Empower our future healthcare workforce to recognize the critical role of family caregivers.
Through Research and Practice
- Test new approaches that support patient AND family caregiver health and well-being.
Through Outreach
- Partner with community stakeholders and policy makers to improve the lives of family caregivers and those they care for.
2026 National Family Caregiving Conference
Utah is proud to host the next caregiving research conference in Salt Lake City, previously held in Pittsburgh, PA. Please come and join experts in caregiving research, policy and practice. More information to come.
For questions, please contact: fcc@nurs.utah.edu
Sign up here to be added to the conference list serv.
For more information, visit this page.
FCC Upcoming Events
2025-2026 CSAL Speaker Event
This event is brought to you by Caregiving Science Across the Lifecourse (CSAL), a partnership with the Family Caregiving Collaborative and the Center on Equity and Aging at Johns Hopkins University College of Nursing. To be added to the calendar invites, please contact christine.moua@nurs.utah.edu.
Join Zoom Meeting
https://utah.zoom.us/j/89735725901
Meeting ID: 897 3572 5901 | Passcode: 54321
See past recordings here.
FCC Kudos
No Wrong Door for Utah Caregivers
We are excited to announce that the Family Caregiving Collaborative received a two-year grant from Administration on Community Living . Our goal is to create a "No Wrong Door" for Utah Caregivers.
What is a No-Wrong-Door?
PROBLEM: The current long-term services and supports (LTSS) access system involves multiple funding streams with often duplicative eligibility and enrollment processes, leaving many individuals feeling bewildered and overwhelmed.
SOLUTION: A single No-Wrong-Door System is where anyone can be seamlessly connected to the full range of community-based options available. Through a network of agencies, NWD expands access to services and supports, helping individuals and their caregivers navigate resources they need with a person-centered approach.
UTah's NWD system aims to support the 450,000+ caregivers in Utah, the essential (and often overlooked) member of the long-term services and supports system. By bringing together dozens of service providers from across the state, we aim to create a series of tools and resources to increase awareness and referral to the many community-based resources and supports that are available to support the invaluable work that family caregivers do to support those with disability and medical needs.
Scholar Spotlights
Every year the FCC partners with the VPCAT Research Scholars Program to select scholars advancing the caregiving/family health science for a 1 year recognition as a Caregiving Fellow. This year, we are pleased to announce the selection of three scholars. Meet our 2025-26 Caregiving Fellows.
Utah is excited to be part of the Caregiver Nation Network
The FCC has been at the forefront of efforts to involve Utah at a national level through the Caregiver Nation Network, which unites caregiving leaders across 10 states.
Read the Press Release
Learn more about the Caregiver Nation Network
Caregiving News & Opportunities
Dr. Schola Matovu was recently invited as Keynote Speaker at the Children's Service Society of Utah's Annual Gala & Silent Auction on September 19, 2025. She spoke on the urgent need to strengthen support systems for kinship families, especially grandparents, most often grandmothers, who step in to raise grandchildren when parents are unable. Among the audience were legislators, policymakers, physicians, funders, journalists, and community members. Watch her presentation here.
The Icahn School of Medicine at Mount Sinai is seeking applicants for a two-year Postdoctoral Fellowship in Caregiving Science. The multidisciplinary training program aims to prepare a cadre of highly-trained clinician scientists who will become independent investigators dedicated to addressing the needs of caregivers (i.e., parents, partners, children, siblings, chosen family, friends) of patients living with all chronic and life-limiting illnesses, disabilities, and mental health challenges.”
Learn more about this opportunity here.
AARP and the National Alliance for Caregiving released a new report Caregiving in the U.S. 2025 revealing that 63 million Americans—nearly 1 in 4 adults—provided ongoing care for an adult or a child with a complex medical condition or a disability in the past year, an increase of 20 million from 2015 to 2025. Of these 63 million caregivers, 59 million were caring for someone over 18.
The report is available here.
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FCC invests in periodic Utah reports to inform policy makers and caregiving researchers on the critical role of family caregivers.
Join us in learning from national leaders in family caregiving.
Stay connected with FCC and learn about activities and funding opportunities (e.g., small grants, pilot grants, travel funds) to Caregiving Scholars at the University of Utah.
Get connected with family caregiving programs and services in Utah.
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Keep updated and take advantage of activities and funding designed to support researchers/educators, have access to a larger network of caregiving scholars, learn more about community services, and provide input on the direction of the FCC.
Lee Ellington, PhD