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Family Caregiving Collaborative

One U for Family Caregivers

For nearly 20 years, College of Nursing researchers, clinicians, and educators have been leading the way in supporting caregivers. The College is uniquely positioned to lead an interdisciplinary effort to revolutionize care and inform new methods of support for patients and their caregivers.    

A growing, but largely unseen, group of family caregivers is quietly providing the healthcare many Americans receive. Their unpaid work is valued at $470 billion nationally ($4.2 billion in Utah) and often comes at the expense of caregivers health. The Family Caregiving Collaborative supports the advancement of person- and family-centered care, where patients and caregivers define their "family" and determine how they will participate in care and decision-making.

  • Through Education: Empower our future healthcare workforce to recognize the critical role of family caregivers.
  • Through Research and Practice: Test new approaches that support patient AND family caregiver health and well-being.
  • Through Outreach: Partner with community stakeholders and policy makers to improve the lives of family caregivers and those they care for.

The Collaborative's mission is to help create a future where caregivers of all ages, races, ethnicities, and gender are seen, heard, understood, valued, connected, and supported. 

Family Caregiving Initiative

Meet the Family Caregiving Collaborative Director

Lee Ellington, PhD

Contact Us

Deidre Schoenfeld
Associate Director for the Family Caregiving Collaborative
deidre.schoenfeld@nurs.utah.edu