Supporting Caregivers Through the Arts
Funded by the NIH National Institute on Aging, the Enhancing Active Caregiver Training (EnACT) intervention is an arts-based intervention aimed at engaging and supporting caregivers of persons living with Alzheimer’s disease and related dementias (ADRD) by using active-engagement techniques that support better management and coping with the common behavioral symptoms associated with ADRD.
Study Design & Protocol
The EnACT intervention is a sequential qualitative-to-quantitative mixed-method design study that is being developed and tested currently to assess the feasibility and acceptability of the study to improve well-being and reduce the perceived stress of ADRD caregivers.
The intervention has three components within each session. Step 1, View, involves group viewing of a caregiving scenario, developed during previous research, which portrays a situation in which a caregiver is dealing with a challenging behavioral symptom. Step 2, Practice, involves small-group rehearsal activities that facilitate understanding, making choices, and examining possible responses. Step 3, Reflect, involves self-reflection and group processing surrounding choices and observations.
What data will be shared: We will share data collected as part of this study, in compliance with the NIH data sharing policy. Data will be de-identified to ensure that the identities of research subjects cannot be ascertained. Audio and video recordings will not be included in data sharing due to the identifying nature of these data
Where will the data be available: The University of Utah College of Nursing will consider direct requests from qualified investigators for access to de-identified datasets generated by the study. Applications should be submitted to and reviewed by the PI for approval
Who will have access to the data: Investigators working under an institution with a Federal Wide Assurance (FWA) may request access to data which may be used for secondary study purposes. The request for data will require, at a minimum, a short proposal describing the research question, the aims of the study, and the data requested
Please submit data requests to firstname.lastname@example.org.
Publications & Presentations
- Eaton, J., Neller, S., Fernandez Cajavilca, M., Johnson, J. K., & Ellington, L. (Forthcoming). Iterative review and revision of the Enhancing Active Caregiver Training intervention. Journal of Alzheimer’s Disease.
- Eaton, J., Neller, S., Fernandez Cajavilca, M., Johnson, J., & Ellington, L. The Development and Refinement of the Enhancing Active Caregiver Training (EnACT) Intervention for Caregivers of Persons Living with Dementia. The Alzheimer’s Association International Conference; Online, 7/31/2022-8/4/2022
- Eaton, J., Neller, S., Fernandez Cajavilca, M., Johnson, J., & Ellington, L. Partnering with Dementia Caregivers to Develop and Refine the EnACT Intervention. Gerontological Society of America; Indianapolis, IN, 11/2/2022
- Eaton, J. Enhancing Active Engagement for Dementia Caregivers: A Synthesis of Interventions. Gerontological Society of America; Online, 11/12/2021