I-SAFE Study
Inclusive Screener for Alzheimer’s Disease and Related Dementias Financial Expenses
Dementia is a general term used to describe a decline in memory, and other cognitive skills, severe enough to impact a person’s ability to perform everyday activities.
Studies have shown that people living with chronic diseases or conditions are more likely to have financial hardship due to greater healthcare expenses.
What is the I-SAFE study?
- Purpose: develop a survey to assess financial hardship for persons living with dementia and their care contributors
- We aim to capture the experiences of all persons living with dementia and their chosen care contributors, regardless of race, religion, political belief, sexual orientation or gender identity, economic, or social condition
- Ultimately, the survey will be used to identify those with financial hardship related to dementia care and offer them support
Who Can Participate?
This study is for persons living with dementia who receive care and their care contributor (2 people). You may be eligible to participate as the care recipient if:
- You have symptoms of memory loss, have been diagnosed with mild cognitive impairment (MCI), Alzheimer’s disease, or have another type of dementia
- You are age 50+
- You speak and read English
- You have someone who provides direct care (cooking, shopping, managing medications, driving to medical appointments) or contributes financially to your care
- You have access to the internet and a device such as a computer for video calling
- You can participate in a conversation with people living with dementia and their care contributors about how dementia affects your financial wellbeing.
You may be eligible to participate as the care contributor if:
- You provide direct care, such as help with meals, bathing, transportation, etc., to the person living with dementia or you contribute financially to their care
- You are age 18+
- You speak and read English
- You have access to the internet and a device such as a computer for video calling
- You can participate in a conversation with other groups of people living with dementia and their care contributors
What is Involved?
- You will fill out online surveys and attend a 90-minute focus group online with other persons living with dementia and care contributors
- You will receive compensation after completing the surveys and attending the focus group
Interested in participating?
- Questions? Please contact us at isafe@utah.edu or 801-646-7577
Contact Us
Email: isafe@utah.edu
Call 801-646-7577