Advancing Acute Care Nurses to Address and Manage Social Determinants of Health
Funding: Health Resources and Services Administration (HRSA) Nurse Education, Practice, Quality and Retention (NEPQR)-Registered Nurse Training Program Grant
During this 3-year project, the team will award scholarships to racially and ethnically diverse RN to BS students, and create learning modules about health equity, social determinants of health (SDOH), and cultural sensitivity that students will complete. Goals are to increase the number of racially/ethnically diverse undergraduate nurses to mirror the diversity of Utah’s patient population, and improve the competency of nursing students and the acute care nursing workforce in Utah to provide equitable health care that is culturally sensitive and addresses SDOH. Team members include Dr. Ana Sanchez-Birkhead, EDI Director, Dr. Brenda Luther, Dr. Linda Edelman, Dr. Rebecca Wilson, Dr. Dina Drits, Dr. Sue Chase-Cantarini, and Dr. Melody Krahulec.
Faculty: Nancy Allen
FQHC (Federally Qualified Health Center) Intervention for CGM (continuous glucose monitoring) Uptake in Hispanic Adults with T1D (Type 1 diabetes)
Funding: National Institute of Diabetes and Digestive and Kidney Diseases R01 Grant
During this 4-year study, the investigators will aim to increase the number of Hispanics with Type 1 diabetes seen at FQHCs who use continuous glucose monitoring.
Faculty: Nancy Allen
Increasing Access to Diabetes Self-Management Education and Support to Deaf and Hard of Hearing People
Funding: Margolis Foundation
Dates: 1/1/2022 – 12/31/2022
The goal of this project is to increase access to diabetes self-management education and support (DSMES) in a way that is acceptable to Deaf and hard-of-hearing people. They will adapt, implement, and refine, a time efficient DSMES program delivered via telehealth by a team of multidisciplinary experts that encourages care partner and peer support to improve A1C (a marker for blood sugar levels) and diabetes self-management in Deaf and hard of hearing populations to reduce disparities.
Faculty: Michelle Litchman, Angie Fagerlin, Nancy Allen, Eli Iacob
Uncovering Caregiver Discharge Readiness for Patient Care Transitions from Hospital to Home: The UCare Study
Funding: Healthcare Research and Quality (AHRQ) R01 Grant
During this 3-year study, their goal is to develop and test a measure that captures the unique factors important to caregivers’ feelings of readiness to engage in caregiving upon discharge from the hospital. Using a mixed-methods approach, the specific aims of this study are to 1) develop a theoretically grounded and psychometrically sound caregiver hospital discharge readiness scale (FamRHDS-R); 2) establish the psychometric properties and measurement invariance of the FamRHDS-R; and 3) establish whether and how the FamRHDS-R is associated with a range of caregiver and patient outcomes.
Faculty: Andrea Wallace , Alycia Bristol
GENIE (Gamified Asynchronous LEarNing of IPE Telehealth)
Funding: Academy of Health Science Educators (AHSE)
Dates: 1/1/2022-12/31/2022
Faculty: Jia-Wen Guo, Sue Chase-Cantarini
Why Nurses Do Not Report: Understanding Nursing Victim Reactions, Attitudes, and Likelihood to Report Patient Aggression
Funding: Sigma Theta Tau - Gamma Rho Chapter
Dr. Scott Christensen received a research grant from the Gamma Rho Chapter of Sigma Theta Tau to help fund his dissertation research.
Faculty: Scott Christensen
Researching COVID to Enhance Recovery (RECOVER) Initiative
Funding: Joan & Sanford I. Weill Medical College of Cornell University
This award is part of a consortium project funded by NIH National Heart Lung & Blood Institute - The RECOVER Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR} Cohort Study.
Faculty: Mollie Cummins
End-of-Life Care Planning Intervention
Funding: Alzheimers Association (AARG-20-685951)
Dates: 7/1/2020 - 6/30/2023
This conceptual model and evaluation of the LEAD intervention will inform future hypothesis development and testing. This intervention advances the science of dementia EOL care planning and addresses public health challenges by guiding and supporting families through challenging EOL care planning conversations, facilitating the documentation and transfer of knowledge regarding EOL care preferences and values (13) and ultimately improving quality of life for individuals with ADRD and their care-partners (4).
Faculty: Kara Dassel
LEADing End-of-Life Dementia Care Conversations
Funding: NIH National Institute on Aging
Dates: 6/1/2022-5/31/2027
This research project will: 1) evaluate the usability, acceptability, feasibility, and initial efficacy of the LEAD Intervention (Life-Planning in Early Alzheimer’s and Dementia) as a self-administered, dementia-focused web-based tool that can be used to facilitate the advanced care planning (ACP) process for 60 diverse community-dwelling pairs consisting of persons in the preclinical or early stage of Alzheimer’s disease and related dementias and their care partner, 2) assess the initial efficacy of the LEAD Intervention on decision-making confidence, relationship quality, subjective well-being, and anxiety in both the care recipient and care partner, and 3) examine the process of ACP congruence (shared understanding of the care recipients’ values and preferences regarding EOL care) as the primary factor related to changes observed during the LEAD intervention. Results from this study have the potential to guide and accelerate the implementation of the LEAD Intervention to community and health care practice, where a dementia-focused ACP process is needed.
Faculty: Kara Dassel
Promoting Age Inclusivity to Enhance Educational Excellence within the University of Utah College of Nursing
Funding: Teaching Innovation Team (TITe) Intramural Grant
Age inclusivity is an important aspect of meeting the needs of an aging population. In higher education, age stratification is often reinforced in how faculty and staff view traditional vs. nontraditional students. Unfortunately, this reduces the ability of trainees to prepare to work with older adults upon graduation. Age inclusivity has positive outcomes for learning, including improving health, reducing social isolation, and decreasing ageism. The College of Nursing (CON) is an important setting to innovate age inclusivity because of longstanding collaborations across nursing and gerontology and the strong commitment to equity, diversity, and inclusion. The team will enhance educational excellence in the College by 1) conducting a needs assessment of age inclusivity, 2) developing training opportunities to improve age inclusivity, and 3) applying for Gerontology Interdisciplinary Program accreditation.
Faculty: Jackie Eaton
Developing an innovation arts-based drama intervention to reduce stress in family caregivers of persons with Alzheimer's disease and related dementias.
Funding: NIH NIA (1K01AG065623-01A1)
Dates: 1/15/2021 - 12/31/2025
Persons with dementia experience behavioral symptoms such as agitation, combativeness, depression, and apathy. These behaviors increase caregiver stress, which leads to negative outcomes, such as poor health, depression, and increased caregiver burden. This project seeks to develop and test an intervention to prepare caregivers for behavioral symptoms in order to reduce stress and improve the overall quality of life for both the caregiver and the person with dementia.
Faculty: Jacqueline Eaton
Developing and Testing the Enhancing Active Caregiver Training (EnACT) Intervention for Dementia Family Caregivers
Funding: NIH/NIA
Dates: 01/15/2021 - 12/31/2025
Persons with Alzheimer’s disease and related dementias (ADRD) experience behavioral symptoms such as agitation, combativeness, depression, and apathy. These behaviors increase caregiver stress, which leads to negative outcomes such as poor health, depression, and increased caregiver burden. This project seeks to develop and test an intervention to enhance active caregiver skill training to prepare caregivers to better manage behavioral symptoms in order to improve ADRD caregiver wellbeing.
Faculty: Jacqueline Eaton
Provide Collaborative Care Training for office-based addiction treatment in health clinics, and support community-based programs for patients and families
Funding: HRSA Rural Communities Opioid Response Program
During this 4-year project, the team will provide Collaborative Care Training for office-based addiction treatment in health clinics, and support community-based programs for patients and families in Carbon, Emery, and Wayne counties.
Faculty: Linda Edelman
Utah's Geriatric Education Consortium Competing Continuation
Funding: HRSA (2 U1QHP287410400)
Dates: 7/1/2019 - 6/30/2024
Utah has one of the fastest growing aging populations. Its 85-years and older population is projected to increase 8-fold between 2006 and 2050. As a result, the use of long-term services and supports (LTSS) is increasing and the capacity and competencies of the interprofessional (IP) LTSS workforce, families, and caregivers will need to be expanded to provide value-based, person-centered care. The purpose of the Utah Geriatric Education Consortium is to enhance healthcare provider workforce capacity to integrate geriatrics and primary care outcomes of older adults utilizing LTSS, and to increase patient, family, and caregiver engagement across rural and urban Utah. To achieve this purpose, we will expand on our successes over the past 4 years in building sustainable partnerships with HealthInsight, our quality improvement organization, and add new long-term care (LTC) and LTSS primary care partners, including home health/hospice and assisted living.
Faculty: Linda Edelman
Interdisciplinary Training in Cancer, Caregiving and End-of-Life Care
Funding: NIH/NINR (T32NR013456)
Dates: 7/1/2018-6/30/2023
The number of patients with chronic and life-limiting illnesses, like cancer, and their family caregivers are increasing, and their health and psychosocial needs are having a profound impact on health services. Our NIH-funded training program is shaping the next generation of scientists to provide evidence on how to best help patients and families sustain health and well-being, foster patient and family engagement, manage symptoms associated with chronic disease, and die free of pain and family burden. This program will support eight pre-doctoral and eight post-doctoral trainees.
Faculty: Lee Ellington (Co-PIs); Kathi Mooney (Co-PIs)
Research Collaborative for Family Caregivers of Older Adults
Funding: NIH NIA (1K07AG068185-01)
Dates: 9/1/2020 - 4/30/2025
With the number of U.S. family caregivers shrinking and the demands on their health and wellbeing increasing, we are facing a family caregiver public health crisis. By connecting new and established interdisciplinary researchers, we can spark new and innovative solutions for the benefit of family caregivers and their care recipients. This K07 Academic Leadership Career Award proposes to formalize connections and promote collaborations across disciplines and academic entities at the University of Utah and Utah Health Sciences to provide the necessary infrastructure, mentoring, content and methodologic expertise to improve the support of family caregivers of older adults.
Faculty: Lee Ellington
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Improving CLABSI (central line-associated bloodstream infection) Risk Assessment Among Children with Cancer and those Undergoing Hematopoietic Stem Cell Transplant Using Machine Learning
Funding: Greater Plains Collaborative
Drs. Gee and Linder submitted their application in response to a call for pilot proposals to strengthen relationships and patient-centered collaborations between investigators at the University of Utah and Intermountain Healthcare. This project will extend their prior work to reduce bloodstream infections in this distinct patient population, and allow them to explore the complex inter-relationships among individual patient, clinical, and nursing care-related variables that contribute to infection. During the first phase of the project, they will work with an interdisciplinary team, including at least one member of the Cancer/Transplant Family Advisory Council, to develop a comprehensive set of variables that is perceived as contributing to the risk of CLABSI. During phase two, they will map these variables to data available in the PCORnet Common Data Model and the PCH enterprise data warehouse, and use advanced analytics to identify risk factors for infection and potential practice changes. This work will foster a University of Utah and Intermountain Healthcare nursing research partnership.
Faculty: Perry Gee, Lauri Linder
Examining Health INequiTies in ImmunE-related adveRSe Events among Cancer paTients: The INTERSECT study
Funding: Flatiron Academic Health Equity Research Grant
The investigators will leverage a national Flatiron Health electronic health record dataset and expand the existing Utah cancer patient population ImmPETUS (Immunotherapy, Palliative, and End-of-Life Treatment Utilization and Spousal Outcomes) dataset to: 1) identify groups of cancer patients receiving immune checkpoint inhibitors at greatest risk for moderate to severe immune-related adverse events during the last two years of life, and 2) assess the mediating role of immune-related adverse events on the relationship between clinical and social determinants of health and inpatient and emergency department visits during the last two years of life. The overall objective is to characterize the development of immune-related adverse events over time to provide insight into the timing of focused clinical management and supportive care. In addition, the focus on the social and structural drivers of immune-related adverse events outcomes may provide guidance for practice and policies to address inequities.
Faculty: Djin Tay , Jia-Wen Guo
GENIE (Gamified Asynchronous LEarNing of IPE Telehealth)
Funding: Academy of Health Science Educators (AHSE)
Dates: 1/1/2022-12/31/2022
Faculty: Jia-Wen Guo, Sue Chase-Cantarini
Increasing Access to Diabetes Self-Management Education and Support to Deaf and Hard of Hearing People
Funding: Margolis Foundation
Dates: 1/1/2022 – 12/31/2022
The goal of this project is to increase access to diabetes self-management education and support (DSMES) in a way that is acceptable to Deaf and hard-of-hearing people. They will adapt, implement, and refine, a time efficient DSMES program delivered via telehealth by a team of multidisciplinary experts that encourages care partner and peer support to improve A1C (a marker for blood sugar levels) and diabetes self-management in Deaf and hard of hearing populations to reduce disparities.
Faculty: Michelle Litchman, Angie Fagerlin, Nancy Allen, Eli Iacob
Virtual Coaching to Maximize Dementia Caregivers’ Respite Time-Use: A Stage 1 Pilot Test for Feasibility and Efficacy
Funding: NIH/NIA (R01AG061946)
Dates: 09/30/2018-05/31/2023
Caregivers to the 5.7 million persons in the United States with Alzheimer’s Disease are susceptible to adverse physical and mental health outcomes, given the often prolonged and challenging care and support they provide to patients in their homes and community. Respite (defined as “time away from caregiving”) is the most often requested service by caregivers. Our project uses a community-engaged design process and a scientifically-rigorous pilot study to evaluate an intervention to coach caregivers on how to maximize the benefits associated with respite time. This type of online-delivered intervention is inherently scalable to real world practice and is expected to help caregivers maintain their overall wellbeing over time, so they can continue providing the estimated 18.4 billion hours of unpaid care with an annual economic value of $232 billion.
Faculty: Rebecca Utz (PI); Michael Caserta; Alexandra Terrill; Bob Wong; Eli Iacob; Louisa Stark
Symptom Care at Home-Heart Failure: Developing and piloting a symptom monitoring and self-management coaching system for patients with heart failure
Funding: NIH/NHLBI (1K23HL148545-01A1)
Dates: 04/15/2020 - 03/31/2025
Keeping heart failure (HF) patients at home with a low symptom burden after hospital discharge is challenging. Evidence shows that delay in HF symptom recognition and poor self-management are associated with unplanned emergency department visits and rehospitalizations. Clinical trials aimed at preventing rehospitalization using telemonitoring have shown limited utility suggesting that monitoring physical changes alone may not be sufficient to maintain stability of HF patients at home. A recent cancer study has demonstrated that patients receiving cancer chemotherapy achieved a 40% reduction in symptoms using Symptom Care at Home (SCH), a computer-interface telephonic interactive voice response system pairing patient-reported symptoms with automated real-time, self-management coaching. While a few HF studies have used interventions that monitored symptoms, no studies have tested a system that monitors and provides real-time, self-management coaching tailored to specific patient-reported outcomes(PRO). The objective of this study is to pilot an adaption of the SCH system to HF resulting in preliminary data to support a fully-powered randomized control trial to test an adapted SCH-HF system that could be widely disseminated. Specific Aims over two-parts are: Aim 1] Tailor the real-time self-management coaching system to integrate HF symptom monitoring and self-management coaching into the SCH-HF system; and Aim 2] Conduct a pilot randomized controlled trial (RCT) to assess the feasibility, acceptability, and preliminary efficacy of the SCH-HF system. This study is significant because it expands our understanding into HF symptom monitoring and management using PRO in the home setting. The proposal is innovative because it integrates HF clinician and patient perspectives to develop a daily home monitoring and real-time self-management coaching system. Primary mentor: Kathi Mooney Co-mentor: Josef Stehlik Advisor: Gary Donaldson Advisor: Sandra Dunbar
Faculty: Youjeong Kang
F31 Fellowship: Examining associations between social network characteristics, obesity-related health behaviors, and weight retention among racially/ethnically diverse postpartum women
Funding: NIH National Institute of Nursing Research
This three-year fellowship project will explore the associations between postpartum social networks and diet, activity, and Postpartum weight retention (PPWR) by 1) Quantitatively investigating how diet, activity, and PPWR at 1-year postpartum are associated with structural and functional features of social networks among a sample of racially/ethnically diverse women, 2) Qualitatively exploring mothers’ perceptions about the influence of their social networks on weight-related health behaviors and PPWR, and 3) Triangulating qualitative and quantitative data using an explanatory sequential mixed methods design.
Student: Jacqueline Kent-Marvick
Assessment of Adolescent and Young Adult Vaccine Confidence and Missed Opportunities for Vaccination in the Mountain West
Comparing The Efficacy, Cost, Feasibility And Acceptability Of Human Papillomavirus (Hpv) Self-testing To Visual Inspection With Acetic Acid (Via) In Rural Nepal
Funding: Sorenson Legacy Foundation
Dates: 3/1/2021 - 2/28/2023
Cervical cancer is preventable, yet nearly 2000 Nepali women are dying annually from cervical cancer. We aim to find a socio-culturally acceptable, effective, low cost cervical cancer screening method which can be successfully implemented in remote and low resource areas in Nepal.
Faculty: Bernhard Fassl; Deanna Kepka
HIV Needs Assessment and Analysis
Funding: Utah Department of Health
Dates: 01/01/2018-12/31/2022
This project will develop a needs assessment that will assess social, behavioral, and healthcare needs of persons living with HIV in Utah and of persons at high risk for HIV infection in Utah. We will pilot test and refine the assessment based on participant feedback, then assess the socio-demographic characteristics and contextual factors in relation to barriers to care, HIV testing practices, adherence to HIV therapy, viral load levels, and quality of life.
Faculty: Deanna Kepka (PI)
Multi-component Assessment of HPV Vaccine Hesitancy in Utah
Funding: Independent Investigator Award by Merck
The purpose of this 2-year project is to uncover disparities in adolescent HPV vaccination hesitancy among rural and religious communities in Utah. They will elicit community feedback about HPV vaccination, social media use, and religiosity. They will also examine the penetration of HPV vaccination misinformation in selected rural and religious communities. These findings will inform HPV vaccination social media campaign messages that integrate local values and perspectives.
Faculty: Deanna Kepka
#4Corners4Health: A Social Media Cancer Prevention Program for Rural Emerging Adults
Funding: National Cancer Institute subcontract Award
During this 5-year project, their goal is to decrease cancer risk factors among emerging adults aged 18-26 living in rural counties in Arizona, Colorado, New Mexico, and Utah (i.e., "Four Corners" states), using a social media campaign designed with community advisors.
Faculty: Deanna Kepka
Using community-based methods and vaccine registry data to improve HPV vaccination receipt in the era of COVID-19
Funding: Utah Cancer Action Network
Dates: 6/30/2022–6/29/2023
Utah Cancer Action Network is soliciting project proposals that address the priority areas outlined in the 2021-2025 Utah Comprehensive Cancer Prevention and Control Plan (State Cancer Plan). The plan addresses the following four priority areas: increase food security among Utahns, create healthy neighborhood environments in Utah, improve access to high-quality healthcare services for all Utahns, and reduce financial toxicity among Utah cancer survivors. Successful grant applications will incorporate strategies from the priority areas outlined in the State Cancer Plan.
Faculty: Deanna Kepka
Assessment of HPV Vaccine Hesitancy in Utah
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Telementalhealth: A Promising Approach to Reducing Perinatal Depression in Utah's Rural & Frontier Communities
Funding: Utah Department of Health
Dates: 07/01/2019 – 06/30/2024
Developing and implementing a telehealth distance platform for the delivery of mental health services can address some of the barriers to assessing care for childbearing women in rural and frontier Utah. Telehealth has begun to revolutionize the delivery of services to address a variety of health care needs, but is just beginning to be explored as a platform for the delivery of maternity and mental health services. All pregnant and postpartum women (up to 1 year after birth) receiving services at any of the collaborating public health clinics will be included in a universal screening program to detect depression during and after pregnancy. Women who screen "positive" for depression will be invited to participate in the telementalhealth program.
Faculty: Gwen Latendresse (PI)
Prevention of Perinatal Depression among at-risk Individuals through Integration of a Multimedia, Web-based Intervention within the Healthcare System
Funding: National Institutes of Nursing Research R01 Grant
During this 3-year project, the team will evaluate the feasibility and acceptability of integrating a remote-access perinatal depression prevention program within a healthcare system and embedded in the existing web-based patient portal YoMingo®. For this type 1 hybrid effectiveness-implementation project, they will use the Implementation Research Logic Model to evaluate systems and strategies that link intervention determinants, including sociocultural determinants, with implementation outcomes in Latino, underserved (rural), and urban populations. In addition, they will use a randomized preference trial to assess the impact of patient preference and sociocultural factors – geographic residence, race/ethnicity, significant life events, mental health history, mental health stigma – on participation and preliminary outcomes.
Faculty: Gwen Latendresse
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Improving CLABSI (central line-associated bloodstream infection) Risk Assessment Among Children with Cancer and those Undergoing Hematopoietic Stem Cell Transplant Using Machine Learning
Funding: Greater Plains Collaborative
Drs. Gee and Linder submitted their application in response to a call for pilot proposals to strengthen relationships and patient-centered collaborations between investigators at the University of Utah and Intermountain Healthcare. This project will extend their prior work to reduce bloodstream infections in this distinct patient population, and allow them to explore the complex inter-relationships among individual patient, clinical, and nursing care-related variables that contribute to infection. During the first phase of the project, they will work with an interdisciplinary team, including at least one member of the Cancer/Transplant Family Advisory Council, to develop a comprehensive set of variables that is perceived as contributing to the risk of CLABSI. During phase two, they will map these variables to data available in the PCORnet Common Data Model and the PCH enterprise data warehouse, and use advanced analytics to identify risk factors for infection and potential practice changes. This work will foster a University of Utah and Intermountain Healthcare nursing research partnership.
Faculty: Perry Gee, Lauri Linder
Deaf Diabetes Can Together (DEDICATE): A Pilot Study
Funding: American Diabetes Association
The overarching goal is to increase access of the Deaf or hard of hearing populations (DHH) to diabetes self-management education and support (DSMES), and reduce disparities related to language access justice. The objective is to deliver a DSMES program that linguistically, culturally, and geographically meets the needs of DHH populations living in the United States.
Faculty: Michelle Litchman
Development of a Diabetes Training for ASL Interpreters
Funding: Association of Diabetes Care & Education Specialists Foundation
Dates: 6/7/2022-6/30/2023
During the upcoming year, these faculty will develop and deliver diabetes training to American Sign Language interpreters to better equip them when translating for diabetes care and education specialists.
Faculty: Michelle Litchman
Adaptation and Pilot Testing of Deaf-Diabetes
Adaptation and Refinement of a Multi-Modal Diabetes Self-Management Education and Support Program for Deaf Care Partners
Emerging Adults with Type 1 Diabetes Social Support Needs Research
Funding: The Clark and Christine Ivory Foundation & Franklin S. and Rachael C. Ivory
Dates: 1/1/2022-12/31/2023
Faculty: Michelle Litchman
Increasing Access to Diabetes Self-Management Education and Support to Deaf and Hard of Hearing People
Funding: Margolis Foundation
Dates: 1/1/2022 – 12/31/2022
The goal of this project is to increase access to diabetes self-management education and support (DSMES) in a way that is acceptable to Deaf and hard-of-hearing people. They will adapt, implement, and refine, a time efficient DSMES program delivered via telehealth by a team of multidisciplinary experts that encourages care partner and peer support to improve A1C (a marker for blood sugar levels) and diabetes self-management in Deaf and hard of hearing populations to reduce disparities.
Faculty: Michelle Litchman, Angie Fagerlin, Nancy Allen, Eli Iacob
Improving Access to Diabetes Education and Care for Deaf Populations
Funding: University of California, Davis
Dates: 7/1/2021 – 6/30/2024
Dr. Michelle Litchman is one of ten nurse scientists accepted to the second cohort of the Betty Irene Moore Fellowship for Nurse Leaders and Innovators. Led by Betty Irene Moore School of Nursing at UC Davis, the three-year fellowship recognizes early- to mid-career nursing scholars and innovators with a high potential to accelerate leadership in nursing research, practice, education, policy and entrepreneurship. Fellows receive $450,000 to conduct an innovative project or study with the potential to address a gap in knowledge, meet a vital need, alter care delivery, or design a new solution to advance health. Michelle’s project is titled Improving Access to Diabetes Education and Care for Deaf Populations, and will involve co-designing a deaf accessible diabetes one-day program, and testing it with a national sample of deaf and hard of hearing people living with diabetes.
Faculty: Michelle Litchman
University of California Global Health Institute Program for Fellows and Scholars
University of California Global Health Institute Program for Fellows and Scholars
Funding: University of California, San Francisco/John E. Fogarty International Center
Dates: 12/1/2021-11/30/2022
Faculty: Schola Matovu
Remote Monitoring and Management of Myasthenia Gravis (REMOTE-MG): A Pilot Feasibility Study UVMMG Innovations in Clinical Care Research Program
Funding: University of Vermont Medical Center
Dates: 1/1/2022 – 12/31/2022
The goal of this study is to evaluate the feasibility and utility of a novel Myasthenia Gravis (MG) monitoring system by evaluating the feasibility of collecting MG specific remote monitoring information weekly from autoimmune MG patients utilizing the SCH system and of transferring this data to medical providers for 2 months; and assessing patient and medical provider opinions on the clinical utility of this SCH and its data.
Faculty: Kathi Mooney, Noah Kolb, Amanda Guidon
Remote Monitoring and Management of Chemotherapy Induced Peripheral Neuropathy (REMOTE- CIPN)
Funding: University of Vermont/NIH NCI
Dates: 5/6/2021 – 4/30/2026
This is a prospective randomized trial designed to investigate a new care model for patients who suffer from nerve damage from chemotherapy called chemotherapy induced peripheral neuropathy (CIPN). All participants in the study will report their CIPN symptoms daily using a website, app or phone for 12 weeks. In one group the data will be collected and participants will be encouraged to reach out to their treating doctors for uncontrolled symptoms. These participants' doctors can prescribe any treatment they feel is appropriate. In the second group, if the symptoms are moderate to severe they will receive a phone call from a nurse practitioner immediately. That nurse practitioner will determine the correct CIPN treatment using a algorithm and prescribe it. The study will track the severity of symptoms over time as well as looking at the impact on treatments for CIPN (medications and referrals).
Faculty: Kathleen Mooney
Huntsman at Home- A nursing driven model of care for rural dwelling cancer patients and their families
Interdisciplinary Training in Cancer, Caregiving and End-of-Life Care
Funding: NIH/NINR (T32NR013456)
Dates: 7/1/2018-6/30/2023
The number of patients with chronic and life-limiting illnesses, like cancer, and their family caregivers are increasing, and their health and psychosocial needs are having a profound impact on health services. Our NIH-funded training program is shaping the next generation of scientists to provide evidence on how to best help patients and families sustain health and well-being, foster patient and family engagement, manage symptoms associated with chronic disease, and die free of pain and family burden. This program will support eight pre-doctoral and eight post-doctoral trainees.
Faculty: Lee Ellington (Co-PIs); Kathi Mooney (Co-PIs)
Siblings as Caregivers: Exploring Support Provided by Siblings for Children with Chronic Illnesses
Funding: The Consortium for Families and Health Research (C-FAHR)
The team will conduct a mixed-methods study to investigate how siblings of children with chronic illnesses are engaged in the caregiving process. The study will help lay the groundwork for future studies supporting children with complex medical needs.
Faculty: Christine Platt
Advanced Practice Clinical Palliative Care Fellowship: A Leading Edge Program Responding to Workforce Demands, Underserved Populations, and Rural and Behavioral Health Needs
Funding: Cambia Health Foundation Grant
The goal of this 3-year project is to develop an Advanced Practice Clinical Palliative Care Fellowship, the first such program in the West, and support three fellows at the University of Utah.
Faculty: Lynn Reinke
Advancing Understanding of Racism-related Health Disparities Beginning before Birth: A Multisite Study with Black and Latina Pregnant Women
Funding: National Center for Advancing Translational Sciences Grant
During this 5-year, multi-site, and longitudinal study, the investigators will aim to advance understanding of racism-related health disparities as well as modifiable stress-buffering factors in pregnant Black and Latina women and infants.
Faculty: Ana Sanchez-Birkhead
Our Patients as Our Teachers
Funding: Teaching Innovation Team (TITe) Intramural Grant
The team will design, implement, and evaluate formative simulation training, including synchronous and asynchronous learning components, to 1) build nursing student competencies in addressing social determinants of health (SDOH) in clinical settings, and 2) identify gaps in current undergraduate and graduate curricula regarding nurses’ preparation for assessing and addressing patient-client SDOH in clinical settings. Students also will learn the value of psychological safety in therapeutic relationships, and factors that may be unique or magnified in underserved settings. The results will help faculty understand how students identify, educate, and advocate for patients with social needs and highlight current gaps in curricula, promote a stronger practice of health humanism, and provide information about SDOH education that can be leveraged within and beyond the College of Nursing.
Faculty: Shawna Sisler
Predicting end-of-life among patients with advanced cancer to support shared decision-making
Funding: Hitachi, Ltd
Faculty: Catherine Staes
Pre-Loss Group Therapy for Dementia Family CPs at Risk for CG
HEAL (Helping to End Addiction Long-term) ERN (Effectiveness Research Network): Data Coordinating Resource Center
Funding: National Center for Advancing Translational Sciences Grant
This multi-year project will encompass multiple studies. During year one, researchers will focus on the Optimizing the Use of Ketamine to Reduce Chronic Postsurgical Pain (KALPAS) study, examining the use of ketamine in the immediate post-operative period after mastectomy for breast cancer.
Faculty: Katherine Sward
A Real-World Examination of Health INequiTies in ImmunE-related adveRSe Events among Cancer paTients: The INTERSECT study
Funding: American Cancer Society Institutional Research Grant
Dr. Tay will 1) Assess the moderating role of minoritized race on the relationship between anxiety and depression, and immune-related adverse events (IrAE) treatment discontinuation, and 2) assess the mediating role of insurance type on the relationship between anxiety and depression, and IrAE-related treatment discontinuation. This research will further understanding of drivers of inequities in health outcomes among patients receiving immunotherapy, and has implications to guide practice and policies to support equitable survivorship and palliative care delivery.
Faculty: Djin Tay
Examining Health INequiTies in ImmunE-related adveRSe Events among Cancer paTients: The INTERSECT study
Funding: Flatiron Academic Health Equity Research Grant
The investigators will leverage a national Flatiron Health electronic health record dataset and expand the existing Utah cancer patient population ImmPETUS (Immunotherapy, Palliative, and End-of-Life Treatment Utilization and Spousal Outcomes) dataset to: 1) identify groups of cancer patients receiving immune checkpoint inhibitors at greatest risk for moderate to severe immune-related adverse events during the last two years of life, and 2) assess the mediating role of immune-related adverse events on the relationship between clinical and social determinants of health and inpatient and emergency department visits during the last two years of life. The overall objective is to characterize the development of immune-related adverse events over time to provide insight into the timing of focused clinical management and supportive care. In addition, the focus on the social and structural drivers of immune-related adverse events outcomes may provide guidance for practice and policies to address inequities.
Faculty: Djin Tay , Jia-Wen Guo
Examining the Role of Palliative Care among Immunotherapy Cancer Patients and their Care Partners using a Multi-Method Approach
Funding: Huntsman Cancer Institute Supportive Oncology and Survivorship Center
Dates: 4/1/2022-4/1/2023
Faculty: Djin Tay
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Implementing a Novel Consent Process for Biospecimen Research after Newborn Screening in Hospitals Serving Diverse Patients
Funding: National Institute of Child Health and Human Development R01 Grant
The investigators will identify determinants, strategies, mechanisms, barriers, and facilitators of consenting quality across hospitals serving diverse and underserved populations for the retention and research use of residual dried bloodspots for the Michigan Biotrust for Health; engage members of underrepresented and non-English speaking communities in Michigan to support implementation of an electronic informed consent intervention (EICI) in diverse hospital settings, and implement and evaluate the EICI consent approach within four major hospitals across the state of Michigan that serve underrepresented persons, Spanish and Arabic speaking participants, and the general population.
Faculty: Andrea Wallace
Uncovering Caregiver Discharge Readiness for Patient Care Transitions from Hospital to Home: The UCare Study
Funding: Healthcare Research and Quality (AHRQ) R01 Grant
During this 3-year study, their goal is to develop and test a measure that captures the unique factors important to caregivers’ feelings of readiness to engage in caregiving upon discharge from the hospital. Using a mixed-methods approach, the specific aims of this study are to 1) develop a theoretically grounded and psychometrically sound caregiver hospital discharge readiness scale (FamRHDS-R); 2) establish the psychometric properties and measurement invariance of the FamRHDS-R; and 3) establish whether and how the FamRHDS-R is associated with a range of caregiver and patient outcomes.
Faculty: Andrea Wallace , Alycia Bristol
Intensifying Community Referrals for Health: The SINCERE Intervention to Address COVID -19 Health Disparities
Funding: NIH/NINR
Dates: 5/14/2021 - 3/31/2025
This real-world efficacy study (NIH stage 3) will determine the benefit of social needs (e.g., housing, food, and transportation) screening, community-based service referrals, and telephonic follow-up as a scalable, sustainable strategy for preventing COVID-19 transmission, and for addressing the secondary health effects of the social, behavioral, and economic impact of the COVID-19 pandemic. Results of this study will provide much needed information regarding whether social needs screening and community service referrals improve health outcomes of vulnerable and socioeconomically disadvantaged populations, an NIH-designated health disparity population, and whether intensive follow-up and collaborative goal- setting help overcome barriers to community service use by patients who are seen in the emergency department and seek COVID testing at community-based and mobile clinic locations.
Faculty: Andrea Wallace
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Cancer misinformation exposure measurement among cancer patients
Funding: Huntsman Cancer Institute
This project will test automated website monitoring tools to document and record patient exposure to cancer misinformation. This will make it possible to accurately measure exposure using our existing Artificial Intelligence prototype to reduce the impact of cancer misinformation on cancer patients can be tested in a future randomized trial.
Faculty: Echo Warner
Addressing Barriers to Primary Care Work Force Needs in Rural and Underserved Settings with Academic-Clinical Partnerships and Innovations in Technology
Funding: HRSA, Advanced Nursing Education Workforce Grant Program (T94HP32908)
Dates: 07/01/2019 – 06/30/2023
This project addresses the growing demand for primary care (PC) services in Utah’s rural communities. The overall purpose is to create sustainable academic-clinical partnerships that result in an increase in advance-practice nurse (APN) graduates who are well prepared to deliver high quality primary care in rural Utah communities. The project has four objectives: 1) increase the availability of rural immersive clinical training sites for APN students by strengthening existing academic-clinical partnerships that serve rural communities in Utah; 2) prepare primary care APN students to practice in rural community settings through enhanced didactic education, longitudinal immersive clinical experiences, traineeships, and scholarly projects that address the specific health care needs of rural populations; 3) train, support, and evaluate primary care APN preceptors in rural communities; and 4) identify, implement, and evaluate approaches to connecting APN graduates with employment in rural and underserved communities.
Faculty: Gwen Latendresse (PI); Tek Kilgore; Valerie Flattes; Kimberly Garcia; Katie Ward; Rebecca Wilson; Lisa Gren; Gillian Tufts
Reconfiguring the Patient Room as a Fall Protection Strategy to Increase Patient Stability during Ambulation
Funding: AHRQ (R18HS025606)
Dates: 09/30/2018-09/29/2023
Despite decades of research into patient falls, falls and the injuries incurred continue to be a serious threat to patient safety. Fall rates continue to be unacceptably high. The purpose of this project is to increase the safety of a hospital room for patient mobility, using innovative simulation strategies and patient-centric design. An innovative simulation environment will be built to enable rapid assessment of room layout and fixture positioning and patient stability. The results from multiple simulations will be used to fabricate a prototype room layout that will be tested by patients with Parkinson disease and reviewed and updated with input from other relevant stakeholders. A final room prototype will be built and tested. Results will be translated and shared with all stakeholders and disseminated for implementation.
Faculty: Janice Morse (Co-PI); Andrew Merryweather (Co-PI); Bob Wong; Bo Foreman
Virtual Coaching to Maximize Dementia Caregivers’ Respite Time-Use: A Stage 1 Pilot Test for Feasibility and Efficacy
Funding: NIH/NIA (R01AG061946)
Dates: 09/30/2018-05/31/2023
Caregivers to the 5.7 million persons in the United States with Alzheimer’s Disease are susceptible to adverse physical and mental health outcomes, given the often prolonged and challenging care and support they provide to patients in their homes and community. Respite (defined as “time away from caregiving”) is the most often requested service by caregivers. Our project uses a community-engaged design process and a scientifically-rigorous pilot study to evaluate an intervention to coach caregivers on how to maximize the benefits associated with respite time. This type of online-delivered intervention is inherently scalable to real world practice and is expected to help caregivers maintain their overall wellbeing over time, so they can continue providing the estimated 18.4 billion hours of unpaid care with an annual economic value of $232 billion.
Faculty: Rebecca Utz (PI); Michael Caserta; Alexandra Terrill; Bob Wong; Eli Iacob; Louisa Stark